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Movies for Research-Thank You!
Thanks to everyone who joined us at the historic Riverview Theater in Minneapolis for "Movies for Research: Scott Stafne ALS Research Fund" on December 9th. Thanks to you, we reached our goal of raising $100,000 for the Scott Stafne ALS Research Fund by the end of 2008. This is an amazing accomplishment, one we set out to achieve in 2004, and you made it happen! You can still help...simply make a donation to the Scott Stafne ALS Research Fund online.
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Stafnes on Twin Cities Live!
August 18, 2008
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Miranda Roxanne Stafne
We are excited to announce the arrival of baby Miranda!
Get the details, read the new baby news blog and see photos in our family photo album.
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Stafnes in the Press
Our New Year's Eve tradition is featured in the MDA/ALS Newsmagazine this winter.
We appeared in a segment on Twin Cities Live in August to promote the 2008 MDA Jerry Lewis Telethon to be held Labor Day weekend. See the video of our 2007 MDA Telethon appearance online now too, if you missed it last summer.
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ALS TDI Leadership Summit
In November, we attended the ALS TDI Leadership Summit in Boston. Scott spoke at the conference and was awarded the Stephen Heywood Patients Today Award, quite an honor. Check out our photos from the weekend.
Update! Scott shot a few segments for the new ALS TDI Ambassador Program introduction video, now available. Kirsten even makes a cameo appearance in the hallway and elevator scenes.
Also, we made the front page of the new ALS TDI website!
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Read our 2007 Holiday Letter here...
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Stafnes in the Press
Some exciting news to share! Scott and Eva are on the cover of
the current issue of the MDA/ALS Newsmagazine, and Scott is featured in an aritcle about preserving memories
inside. Our ALS Research Fund was also featured as a "Call to Action" in
the current issue of Hybrid Mom magazine. Click the article below to view a larger version.
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ALS TDI Leadership Summit
In November, we attended the ALS TDI Leadership Summit in Boston. Scott spoke at the conference and was awarded the Stephen Heywood Patients Today Award, quite an honor. Check out our photos from the weekend! Also, we made the front page of the new ALS TDI website. |
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What kind of world do you want?
We had the honor of meeting John Ondrasik of Five for Fighting and Augie Nieto at the 2007 MDA Telethon in September. Augie is an amazing man and provides the inspiration, emotion and financial backing behind much of the amazing ALS research happening today.
An easy way for you to help is to watch some of these inspiring videos. It's free, and for each video you watch in its entirety, $1 will be donated to ALS research.
Hint: Look for Scott and our family in two of the videos!
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Scott Stafne: Anyone's Life Story
Scott was featured during ALS Awareness Month in the MDA campaign, Anyone's Life Story, with other ALS patients from around the country.
View Scott's profile here
See Scott's TV appearance on Showcase Minnesota!
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2007 MDA Telethon
It's time for the 2007 Jerry Lewis MDA Telethon and we've been invited to appear on the show! Watch for Scott and our family on the national Jerry Lewis MDA Telethon this Labor Day weekend!
--Nationwide--
Late Sunday night around 11pm West Coast time (1am in Minnesota) - profile and interview
--Locally in MN--
Monday around 12 noon - replay of profile
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Congregation uses its 'Talents'
'Parable of the Talents' tells of two servants who pleased their master by taking care of his money and increasing his investment. Now a Twin Cities congregation has been issued a similar task: Use 'God's money' to help others and see how much it grows. It all started when a pastor at St. James Lutheran Church in Burnsville gave Sandy Sokolik and 39 other parishioners $100 bills. Read more...
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2006 Newspaper Articles and Other Press
KSTP Channel 5
6:30 PM News
July 19, 2006
Northeaster
July 11, 2006
Stillwater Courier
June 29, 2006
Pioneer Press
Turning Point
June 26, 2006
South Washington County Bulletin
June 7, 2006
Hudson Star Observer
May 31, 2006
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